Saturday, 1st November International Congress on Neuronal Ceroid Lipofuscinoses 2025

PANEL MEMBERS

Jonathan Cooper

Nadia Mitchell

Tish Hevel

Chun-Hun Chan

Sara Mole

Angela Schulz

Ineka Whiteman

PANEL MEMBERS

Jennifer Vermillion
Heather Brown
Sophia Melocco Hill
Katie Geering
Raymond Wang
Miriam Nickel

• Behavioral Intervention Applications in Rare Disease: A Clinical Model of Care in Batten Disease - Charles Albright
• Innovation in Batten Disease Clinical Trial Design: Outcomes of a Multistakeholder Conference - Jennifer Vermilion
• Defining Meaningful Research Priorities in the Neuronal Ceroid Lipofuscinoses: A Collaborative Stakeholder Approach - Erika F. Augustine

All Speakers from the session will take part in the Q&A panel